Asked by: Fleur Anderson (Labour - Putney)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent steps her Department has taken to improve (a) services for children who require end of life care, (b) services for children with life threatening conditions and (c) services for children with life limiting conditions.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
Integrated care boards (ICBs) are responsible for determining the level of National Health Service funded palliative and end of life care for children locally, and they are responsible for ensuring that the services they commission meet the needs of their local population.
At a national level, in line with the NHS Long Term Plan, NHS England has provided approximately £12 million of match-funding to participating ICBs, and formerly CCGs, between 2020/21 and 2023/24. This was committed to invest in children and young people’s palliative and end of life care, giving a total investment of £24 million. In addition, NHS England supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. NHS England has confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need.
The Department is in ongoing discussions with NHS England to explore improving oversight and accountability of all-age NHS palliative and end of life care commissioning. Additionally, The Department, through the National Institute for Health and Care Research, is investing £3 million in a new Palliative and End of Life Care Policy Research Unit. This will help build the evidence base on all-age palliative and end of life care to inform policy making in this vital area.
NHS England’s palliative and end of life care team has recently engaged with 24 ICBs to understand how to better support commissioners, and has also reviewed all 42 ICB Joint Forward Plans for their inclusion of palliative and end of life care.
From April 2024, NHS England will include palliative and end of life care in the list of topics for regular performance discussions between national and regional leads. Additionally, NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together all relevant data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of their local population, including children, enabling ICBs to put plans in place to address and track the improvement of health inequalities.
Asked by: Karin Smyth (Labour - Bristol South)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what discussions she has had with integrated care boards on estimates they have made of how many children are accessing palliative care in their areas.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
While there is no explicit requirement for integrated care boards (ICBs) to identify how many children and young people specifically access palliative and end of life care services, the commissioning of palliative care services is the statutory duty of ICBs, which must commission these services in response to the needs of their population.
In July 2022, NHS England published statutory guidance for commissioners on palliative and end of life care, setting out the considerations for ICBs to meet their legal duties, and making clear reference to the importance of access to services.
NHS England has also published a service specification for children and young people, which provides guidance on undertaking assessments to enable high-quality commissioning of services, that meet both population need and preferences.
The Department is in ongoing discussions with NHS England about oversight and accountability of National Health Service palliative and end of life care commissioning, including for children and young people.
From April, NHS England will include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads. These national meetings will provide an additional mechanism for supporting ICBs to continue to improve palliative and end of life care for their local population.
Asked by: Karin Smyth (Labour - Bristol South)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether she has had discussions with NHS England on the adequacy of (a) regional planning and (b) accountability for children’s palliative care.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
The Department is in ongoing discussions with NHS England about the oversight and accountability of National Health Service palliative and end of life care commissioning.
From April 2024, NHS England will include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads.
NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together relevant, all-age local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of those in their local population, including children, enabling integrated care boards to put plans in place to address and track the improvement of health inequalities.
Asked by: Karin Smyth (Labour - Bristol South)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will make an assessment of the potential merits of publishing a long-term strategy for supporting the palliative care needs of children and young people.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
While the National Health Service has always been required to commission appropriate palliative and end of life care services to meet the reasonable needs of the population, palliative care services were added to the list of services an integrated care board (ICB) must commission, promoting a more consistent national approach and supporting commissioners in prioritising palliative and end of life care. To support ICBs in this statutory duty, NHS England has published statutory guidance on palliative and end of life care, and a service specification for children and young people.
Asked by: Stephen Timms (Labour - East Ham)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if NHS England will (a) fund and (b) publish a data dashboard to help integrated care boards commission children and young people’s palliative and end of life care.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
NHS England has developed an all-age palliative and end of life care dashboard, which brings together all relevant local data in one place in an easily accessible format. The dashboard is accessible to integrated care boards (ICBs) and their commissioners and helps them understand the palliative and end of life care needs of their local population, including children and young people. This supports commissioners in their statutory duty for palliative and end of life care, enabling ICBs to put plans in place to address and track the improvement of health inequalities, and ensure that funding is distributed fairly based on prevalence.
Funding has been confirmed to ensure continued maintenance of the dashboard for 2024/25, with discussions ongoing regarding further development and use. There is, however, existing publicly available data, such as the Office for Health Improvement and Disparities ‘Fingertips’ data on palliative and end of life care.
Asked by: Baroness Hodgson of Abinger (Conservative - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what assessment they have made of the prospects of equitable access to hospice care for all children and young people who need palliative and end of life care in 2024.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
The Government recognises that access to high-quality, palliative and end of life care can make all the difference to individuals and their loved ones. Funding for children’s and young people’s palliative and end of life care is made available locally through integrated care boards (ICBs), which are responsible for commissioning services in response to the needs of their local population.
In addition, NHS England has confirmed that it will be renewing the Children and Young People’s hospice grant for 2024/25, once again allocating £25 million grant funding for children’s hospices. NHS England is reprioritising budgets for 2024/25, in light of the revised assessment of financial position and, whilst it is holding funding aside for the children and young people’s hospice sector, it cannot confirm further details, including the distribution mechanism, until 2024/25 financial planning is concluded.
Children and young people’s palliative and end of life care is provided by a range of services and providers from across the statutory and voluntary, community and social enterprise sectors. The majority of palliative and end of life care is provided by National Health Service staff and services, but we recognise that the voluntary sector organisations, including hospices, also play a very vital part in providing support to people at end of life and their loved ones.
The Government has not made a direct assessment of the prospects of equitable access to hospice care for all children and young people who need palliative and end of life care in 2024. However, NHS England’s palliative and end of life care team has recently engaged with 24 ICBs to understand how to better support commissioners and has also reviewed all 42 ICB Joint Forward Plans for their inclusion of palliative and end of life care, with 69% making a specific mention. Further analysis is ongoing, but the intention is to use this to help shape and focus support to ICBs.
Asked by: Baroness Hodgson of Abinger (Conservative - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what directions and guidance the Department of Health and Social Care will provide to integrated care boards on commissioning palliative and end of life care for children and young people.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
Children and young people’s palliative and end of life care is provided by a range of services and providers from across the statutory and voluntary, community and social enterprise sectors. Commissioning of these services is the statutory duty of integrated care boards (ICBs), which must commission palliative and end of life care services in response to the needs of their local population and ensure that they are provided by a range of local organisations with the experience and skills to meet those needs.
In July 2022, NHS England published statutory guidance for commissioners on palliative and end of life care, setting out the considerations for ICBs to meet their legal duties. A copy of this guidance is attached.
NHS England has also published a service specification for children and young people, which provides guidance on undertaking assessments to enable high-quality commissioning of services that meet both population need and preferences. A copy of this specification is attached.
NHS England’s palliative and end of life care team has recently engaged with 24 ICBs to understand how to better support commissioners, and has also reviewed all 42 ICB Joint Forward Plans for their inclusion of palliative and end of life care, with 69% of those plans making a specific mention. Further analysis is ongoing, but the intention is to use this information to help shape and focus support to ICBs.
Asked by: Baroness Hodgson of Abinger (Conservative - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government how much money was spent per case on palliative and end of life care for children and young people in (1) 2022, and (2) 2023; and how much they anticipate spending in 2024.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
The Government does not hold information on how much money was spent per case on palliative and end of life care for children and young people in 2022 and 2023. Patient-level spend is not collated at a national level, with spend based on need determined during the integrated care board (ICB) commissioning process.
At a national level, NHS England supports palliative and end of life care for children and young people through the Children and Young People’s hospice grant. The grant provided approximately £17 million in 2021/22, £21 million in 2022/23 and £25 million in 2023/24 directly to children and young people’s hospices. NHS England has confirmed that it will be renewing the grant for 2024/25, once again allocating £25 million grant funding for children’s hospices using the same prevalence-based allocation approach as in 2022/23 and 2023/24. NHS England is reprioritising budgets for 2024/25, in light of the revised assessment of financial position and, whilst it is holding funding aside for the children and young people’s hospice sector, it cannot confirm further details, including the distribution mechanism, until 2024/25 financial planning is concluded.
Additionally, in line with the NHS Long Term Plan commitment, NHS England has provided approximately £8.5 million match-funding to participating ICBs and formerly clinical commissioning groups between 2022/23 and 2023/24 that committed to invest in children and young people’s palliative and end of life care, including hospices, giving a total investment of £17 million for that period.
Feb. 19 2008
Source Page: Better care, better lives. Improving outcomes and experiences for children, young people and their families living with life-limiting and life-threatening conditions. 54 p.Found: Better care, better lives.
Asked by: Ellie Reeves (Labour - Lewisham West and Penge)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to ensure that NHS integrated care boards commission (a) end-of-life and (b) other palliative care for people in all age groups.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
While the National Health Service has always been required to commission appropriate palliative and end of life care services to meet the reasonable needs of their population, in 2022, palliative care services were added to the list of services an integrated care board (ICB) must commission, promoting a more consistent national approach and supporting commissioners in prioritising palliative and end of life care in all settings. To support ICBs in this duty, NHS England has published statutory guidance and service specifications for both adults and children.
From April 2024, NHS England will include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads. Additionally, NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together relevant, all age local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of both adults and children in their local population, enabling ICBs to put plans in place to address and track the improvement of health inequalities.
NHS England has also funded seven Palliative and End of Life Care Strategic Clinical Networks, each with a dedicated Children and Young People Lead. These networks support commissioners in the delivery of outstanding clinical and personalised care for people in the last year of life and reduce local variation.